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The booming new profession of patient advocate

A doctor examines a patient. As the health care system gets more complex, more people are turning to patient advocates for help.

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When William Roach was diagnosed with brain cancer last year, he knew he needed to make important decisions -- and he wanted someone who could help him make them. "It's not hard to find people who are sympathetic," says Roach. "It is hard to find people that are both sympathetic and can provide information that can actually be helpful."  

Roach learned about patient advocates at his doctor's office and decided to contact Elisabeth Schuler Russell of Patient Navigator, a health care consultant. 

"Almost immediately [Russell] had some very good thoughts on what I should be looking into, what I should be trying to avoid," says Roach. She even had some dietary and nutrition tips for him.

Russell, who serves as president of the National Association of Healthcare Advocacy Consultants, says there are roughly 200 patient advocates working in the U.S. right now. She says the profession is in its infancy, and many times doctors don't even know what she does.  

"They’re a little skeptical at first," says Russell. "Because you’re not a family member, so why are you here? But once we explain to them that we’re there to help manage all the moving parts and to benefit the patient, they’re usually fine with that."  

Russell charges $125 an hour, which she says is about average. She says most of her clients only need a few hours of her time -- "We help patients find the right doctors and get great research so they can become their own best advocate."

As the health care system becomes more complex, more people may need this kind of help, says James Unland, president of The Health Capital Group.  "The demand is increasing and I think it’s going to[do] nothing but grow," he says. As Baby Boomers age, Unland believes that they will likely turn to patient advocate services for help choosing doctors, treatments, medications and even dealing with billing (a whole other arm of the profession).

But Les Funtleyder, author of "Health Care Investing," warns that patients should beware. He says there is no licensing or accreditation for patient advocates and no actual qualifications are required.  "You see this at the beginning of almost any new industry," says Funtleyder. "There are always good ones and bad ones, and hopefully the bad ones get weeded out."

William Roach believes he got a good one -- and that the $2,500 he spent on a patient advocate actually saved him money because it meant fewer hours with his specialist. Luckily, Roach says he hasn't used his patient advocate in awhile. "My MRIs have been clear, clear, clear," says Roach. "And they took me off the chemotherapy I was on and, like most chemotherapies, that’s something you’d like to see in the rearview mirror. "

About the author

Stacey Vanek Smith is a senior reporter for Marketplace, where she covers banking, consumer finance, housing and advertising.
erinpcarr's picture
erinpcarr - Oct 8, 2012

Glad that the word is getting out about the value of having a patient advocates to take on the burden and stress of the medical system. The goal is to allow the patient to focus on healing rather than being overwhelmed and confused by the details of care coordination.

Erin P. Carr, MBA
CompassCare
www.mycompasscare.com

CKNichols's picture
CKNichols - Oct 5, 2012

I'm happy to see media efforts to communicate patient advocacy services to healthcare consumers. Les Funtleyder is entirely correct that, because the field is in its infancy, there is currently no oversight over the practice of patient advocacy. No certification currently exists. It is important to closely interview those advocates you believe are helpful to your individual circumstances. Ask about their education and training, skills background, and review any online information about them (usually an abundance is available through their website, Facebook page, Twitter posts, and LinkedIn profile). Ask for references, and above all, how their particular practice is best suited to your issue.
Claudia K. Nichols
PilotHealthAdvocates.com
https://twitter.com/ClaudiaNichols
http://www.linkedin.com/in/claudiakimnichols
https://www.facebook.com/PilotHealthAdvocates?fref=ts
ClaudiaNichols

SoCalHealthAdvocates.com's picture
SoCalHealthAdvo... - Sep 30, 2012

I am proud to be a member of the National Association of Healthcare Advocacy Consultants. I'm also proud for what it represents in their Code of Ethics. Transparency and Honest Disclosure. (www.nahac.com/code/).

The health care systems like any big institution can't always avoid conflict of interest issues in their operations.

People who are seeking healthcare services need support of advocates that can coordinate and provide them safe, effective, and patient-centered care. Advocates can coach patients to be good health consumers.

Boom in health advocates professional support the need of people to get right care, right time, right providers and at the right cost.
www.socalhealthadvocates.com
David Sandhu, RN, BSN, PHN, CCM

kamccrory's picture
kamccrory - Sep 28, 2012

The audio link appears to be incorrect. It's talking about the I-Phone and google maps.