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Oct 16, 2018

Who owns genetic testing results?

DNA and genetic testing are big business. But there are real questions about privacy and about what happens to your genetic information after you get tested. Recently, the DNA testing company 23andMe partnered with pharmaceutical giant GlaxoSmithKline to develop personalized drugs and research treatment for diseases like lupus and Parkinson’s. Jen King is director of consumer privacy at the Center for Internet and Society at Stanford Law School. King told Marketplace Tech’s Molly Wood that, surprisingly, most people who take DNA tests don’t think the data is all that personal. (10/16/18)

A visitor views a digital representation of the human genome in 2001 at the American Museum of Natural History in New York City.
A visitor views a digital representation of the human genome in 2001 at the American Museum of Natural History in New York City.
Mario Tama/Getty Images

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DNA and genetic testing are big business. But there are real questions about privacy and about what happens to your genetic information after you get tested. Recently, the DNA testing company 23andMe partnered with pharmaceutical giant GlaxoSmithKline to develop personalized drugs and research treatment for diseases like lupus and Parkinson’s. Jen King is director of consumer privacy at the Center for Internet and Society at Stanford Law School. King told Marketplace Tech’s Molly Wood that, surprisingly, most people who take DNA tests don’t think the data is all that personal. (10/16/18)